Height, weight, blood pressure, and EKG were first. Her height and weight alone were good indicators of how well she has recovered. In the four weeks since her last appointment, she grew an inch and gained two pounds, putting her at 3'10" (99th percentile) and 49 pounds (95th percentile)! Additionally, her blood pressure was normal and her EKG results were great, with p-waves "all over the place," according to her cardiologist.
The examination part of the appointment followed the data-collection part. Amelia's cardiologist said that her scar looked good, but that we will have to be careful to keep it covered up as the weather gets warmer and sunnier, so that it doesn't darken. In addition to looking good, things sounded good, too: post-surgery, Amelia's cardiology team could still hear what they were calling a "flow murmur," but it couldn't be heard on Monday.
After meeting with the cardiologist it was time for another echo -- always the longest part of an appointment! Definitely Amelia's favorite part, though, because she gets to watch TV... So she got to watch The Bee Movie while the sonographer clicked away, capturing image after image of her heart. He got some great pictures, including several showing the actual repair in her heart. We got a print-out of one to take with us:
See that bright half-circle on the upper right? That's the repair! |
More good news after the cardiologist examined the pictures: The pressure gradient in Amelia's SVC (at a 3-4 in the hospital and then a 7 at her first follow-up) was down to a 2! This could be due to two different things: (1) there isn't as much narrowing of the SVC as we thought there might be, or (2) additional veins have opened up to help with drainage and have taken over part of the function of the SVC. Either way, it's a good thing!
Amelia's next follow-up appointment has been scheduled for June. In the meantime, she has to be on iron for about two more months. The doctors aren't worried about the anemia, since it was caused only by the surgery itself, and are expecting that everything will be normal by then. The only other continued effect of the surgery? Amelia has to be on prophylactic antibiotics before dentist's appointments. No big deal!
The last line of the summary report from Amelia's appointment is particularly fitting, given her activity level as of late: "There are no restrictions or limitations." Hoping that this statement is true for years to come!
And if this wasn't enough good news for one week, we got some more happy, Amelia-related news yesterday. She won the (literal, Boston Public Schools) lottery and will be attending kindergarten at the excellent school two and a half blocks away from our house.
For those of you thinking, "well, obviously..." let me fill you in on the craziness that is (or WAS -- it will change next year) the school assignment system for BPS.
BPS is divided into three zones. There are roughly thirty schools in our zone, some about a 45-minute bus ride away. Additionally, everyone has a "walk zone" within their zone, which includes all schools within a mile radius of your house. We have three walk zone schools. Instead of just attending the school closest to them, kids in the BPS system are entered into a lottery to determine which school they will attend. When assigning children to schools, half of the spots at a given school are reserved for kids within the walk zone (minus the spots taken by siblings of current students). The other half of the spots can go to any child within the larger zone (although walk zone kids can be considered for these spots, as well).
In January, you begin the registration process for your future-kindergartner, bringing numerous documents to prove that you live in Boston. You also bring a list in which you have ranked the schools in your "zone," from first choice to last. After the first round of registration closes, everyone's preferences are run through a computer system, and children are matched with schools. If everyone just ranked the schools closest to them, it would be no big deal. But because some schools are better than others, or have special/desired programs, it doesn't work that way. And, of course, we happen to live near three really great elementary schools, so getting into them can be kind of competitive.
Anyway, we ranked only four schools in our zone: our three walk zone schools, and one near-ish to my office downtown. (We figured that if Amelia didn't get into one of those, we would put her into private school or move to the suburbs... I definitely wasn't going to put my five-year-old on a bus to Dorchester every morning!) As luck would have it, we got our first choice: A wonderful school that is literally just two and a half blocks from our house. So -- BIG sigh of relief around here!
Assignment letter and mailing back the confirmation of attendance! |
And that was our week! Hope that you all enjoyed something green this St. Patrick's Day. I leave you with a photo of our three little leprechauns...
Only 1/16th Irish, but enjoying the holiday, anyway! |